Posts from the ‘Fibro Sites’ Category

XMRV linked to CFS/ME and Fibromyalgia?

When you were first diagnosed with either Chronic Fatigue Syndrome (CFS/ME) or Fibromyalgia, did you feel as if something invaded your body and took it over? Was it sudden-feeling normal one day and feeling terribly abnormal the next? I always had a gut feeling that it was possibly an underlying disease causing my body to go haywire. In fact, scientists had suspected a possible virus causing CFS/ME called the Epstein Barr Virus. Many CFS/ME patients tested positive for this virus, yet many others were left in the lurch still without answers.

New research has alerted the fibromyalga and CFS/ME community of another virus as a possible cause of our illness, XMRV, a type of Retrovirus. What is XMRV? According to the Dr. Robert Silverman, XMRV is a human retrovirus similar to HIV and HTLV-1. Retroviruses are responsible for some forms of cancer also. Dr. Silverman discovered XMRV “in prostate cancer tissue of men with a specific genetic defect in their antiviral defense pathway.” ( -Researchers at the Whittemore Peterson Institute)
This virus interested this institution since XMRV was found in over 95 % of blood samples taken from patients in their study group. So they partnered with Dr. Silverman’s Cancer Institute to compare their research. The Frequently Asked Questions page on their website will provide you with full details.
Click Here

This is one of those subject that is still new, and I really do not know if this is the answer we’ve been waiting for. First, it was the Epstein Barr Virus; then some doctors suspected the Herpes Zoster virus; now we have XMRV. If a virus is the cause, why do some people develop fibromyalgia after a car accident or slip and fall? Or why do CFS/ME symptoms occur after a hormonal change such as pregnancy or menopause? Or why do persons develop symptoms as a result of a secondary illness (secondary fibromyalgia) such as thyroid disease, sleep apnea, lupus or polymyalgia rheumatica? If it’s only a virus, why do people, such as myself, improve after physical therapy, herbal therapy, or other bodywork therapies? In retrospect, if in fibromyalgia it’s only a virus, then the makers of Lyrica, Cymbalta, and Savella are in big trouble or disappointed, to say the least. However, it really does offer a better explanation for CFS/ME. For years, several viruses have been named the culprit. Is this new virus just another one to add to the list or have researcher finally found the right virus? Only time will tell.

According to the article Chronic Fatigue Syndrome A New Explanation by Dr. Gabe Mirkin, XMRV caused nerve damage in animals. Epiphany: Did we all start off with CFS/ME which is possibly caused by a virus that allegedly cause nerve damage thus resulting in Fibromyalgia which is now known as a central NERVOUS system disease?

I’m definitely book marking these sites; it will be interesting to see how this develops.

Here are a few websites that I have found. What is your conclusion?

Chronic Fatigue Syndrome Community

Virology Blog

CFS/ME and Retroviruses

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Check out the new Bella articles

Recent Articles

Is It Depression or Sadness?

Book Review: Living With Fibromyalgia

Fibromyalgia and Weather

Ultrasound Therapy for Fibromyalgia

Enjoy!

Fibro Herbs Coming Soon!!!!

As the editor of the Bella online site, I receive requests from individuals that want to know what works for me. Many people don’t realize that some of the fibromyalgia symptoms can be treated with natural remedies. Why take Ambien when Lavender essential oil dropped on your pillow or a drop on the wrist can do the trick for most people? Why not take White Willow Bark instead of asprin?

Of course, not all products are created equal, and it can be a headache trying to determine which brand is quality. In light of this, I’ve decided to create a website that offers the products that I use on a daily basis-Fibro Herbs.
This site will provide you with information regarding alternative treatments and herbal solutions to fibromyalgia, CFS/ME, and the associated illnesses. Our monthly newsletter will feature an herb, essential oil, and a treatment each month. The newsletter begins September, so please visit the website and sign up, so that you won’t miss a thing.

The shopping site is under development, and the initial products will be featured by August 16, 2009.

So stay tuned!

We did it!

Looks like we did it! The “murky ailment” guy’s article can’t be found. The links that I had do not work any longer. So, I guess we forced the untruth off of the net.

Way to go Fibroites!!!

Veronica

The FDA Approves a Third Medication for Fibromyalgia

Well, it doesn’t work on dopamine, but it’s making fibromyalgia more real to unbelieving doctors and to the public. The medication is called
Savella or Milnacipran. We’ll see what the public has to say about it. When the FDA approves a drug that addresses dopamine, I’ll applaud then!

Reaching Out Website Review

Reaching-Out is a gem among support networks in the FMS/CFS community. Learn more about this great web site and the services they offer.

Read…

Invisible Illness Week September 8-14, 2008

This year’s 2008 Invisible Illness Week conference begins today. Check out the conference schedule with this week’s teleconferences at Blog Talk Radio.

The topics for Monday:

Dealing With Hurt Feelings and Mixed Up Relationships- Leslie Vernick

Stree-Buster that Work: Faithful and Fun Ways to Lessen Stress and Encourage Hope and Health- Maureen Pratt

Secrets of Paying for Medical Care- Jacqueline L. Jones

Check the schedule for the time for your area.

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